There are many places and ways to obtain information about Alzheimer’s and various other dementia causing diseases as well as care options for dementia patients. Rather than overwhelm you with an exhaustive listing, we provide here some Websites that prove reliable and current with relevant information. The list includes both local and national as well as governmental agencies and not-for-profit organizations. We hope you will utilize these Websites to better understand and offset the negative effects of dementia.
|
|
|
The Alzheimer’s Association is the leading voluntary health organization pursuing the following: (1) a cure for Alzheimer’s disease, (2) improved care and support for all affected by Alzheimer’s, and (3) reducing the risk of dementia for individuals by promoting brain health. You will find an abundance of helpful information by visiting the AA’s website. This site is specifically helpful at explaining the symptoms, progression, treatments, and brain changes associated with Alzheimer’s. You can also locate local chapters by doing a state or zip code search.
|
The National Institute on Aging. Visit this website to view the Federal Government’s latest efforts to combat Alzheimer’s disease. This site features the Alzheimer’s Disease Education and Referral Center (ADEAR) and will enlighten you on the latest research findings as well as current and ongoing projects.
|
The Lewy Body Dementia Association (LBDA). Lewy bodies are collections of protein occurring inside brain cells causing such disorders as Parkinson’s disease and are the second most common cause of dementia following Alzheimer’s disease. The LBDA website will educate you about the nature of and treatments for Lewy Body Dementia (LBD).
|
Hospice Foundation of America is a not-for-profit organization that provides caring support, services and information related to the end-of-life process. They assist individuals and professionals in dealing with terminal illness, death and the grieving process. Hospice can help you through the most difficult times associated with any terminal illness and are very experienced with the end stages of Alzheimer’s disease.
|
The Alzheimer’s Project is presented by HBO Documentary Films and the National Institute on Aging in association with many other supporting groups. The project features 4 documentary films that can be viewed for free. In addition, The Alzheimer’s Project provides 15 in-depth videos showing the scientific and medical understanding of the disease. You will enjoy watching these informative and touching films and may want to share them with groups or other individuals.
|
The National Adult Protective Services Association (NAPSA). NAPSA is a not-for-profit organization and is the only national level organization qualified to conduct research and develop training materials for the field of Adult Protective Services (APS). The NAPSA Website provides APS resources in the forms of publications, trainings, library and links. Additionally, the site features a large “REPORT ABUSE” button on each page directing the user on where/how to report adult abuse in each of the 50 United States.
|
|
|
|
Kentucky Elder Abuse Awareness is a campaign launched by the Cabinet for Health and Family Services (CHFS) and is aimed at educating the public and reducing the number of elderly abuse cases in Kentucky. The site provides examples of how the elderly are often mistreated—sometimes unintentionally—along with contact information and statistical data for the state. Instructions are also provided for establishing local Elder Abuse Councils.
|
|
Kentucky Long Term Care Ombudsman is a state managed volunteer program of professional individuals who advocate for persons living in nursing homes. Find out who your local ombudsman is through this link as well as many additional services and agencies available to persons dependent on long term care. Your ombudsman will work with you to remedy concerns or problems you might be experiencing with a facility.
|
|
Kentuckians for Nursing Home Reform is a statewide volunteer group dedicated to improving the quality of care for Kentuckians residing in long term care facilities. You can sign up for the organization’s informative e-newsletters and urgent bulletins concerning the latest news and legislative events.
|
KRS Chapter 216. This is a direct link to Kentucky’s laws governing health facilities and services. After clicking on the link, scroll down to specifically find Long Term Care Facilities, Housing for Elderly, Services to Senior Citizens, and Health and Geriatric Authority Projects. Empower yourself by reading these laws and knowing the rights of Kentucky’s vulnerable adults.
|
Kentucky Legislative Research Commission. This is the official site for researching the state’s legislative structure, schedules, state representatives, public services, laws, etc. Utilize this government site to understand yours and/or your loved one’s rights as a state citizen and to locate local legislators.
|